Designing Proof and Evidence with Minorities and Outlier Data

This co-design activity addresses the challenge of working with small group and highly diverse data for evidence-based decisions. As government policy decisions are increasingly based on evidence that neglects the needs of diverse and marginalized groups, we are co-designing acceptable forms of evidence, proof and data for these groups, as well as strategies for collecting and providing evidence. Fall 2021

Designing Proof and Evidence with Minorities and Outlier Data co-design

In a fall 2021 co-design, stakeholders address the challenge of working with small group and highly diverse data for evidence-based decisions.

Designing Proof and Evidence with Minorities and Outlier Data workshop video

Government policy decisions, and adjudicative rulings that interpret and reinforce them, are increasingly based on the collection and analysis of “evidence” through processes that rely on large data sets and statistical proof. These processes neglect the needs of diverse and marginalized groups, such as people with disabilities, since their experiences are dismissed as anecdotal or as producing outlier data. And yet it is often members of marginalized groups who are most impacted by policy decisions, and to whom these policy changes do the most harm.

In this design challenge we will co-design:

  1. Acceptable forms of evidence, proof and data that could be produced by a highly diverse group of small minorities and outliers who are marginalized, and
  2. Alternative strategies and tools for minorities to collect and provide this evidence to policy makers.

The recent policy changes to Medical Assistance in Dying (Bill C7) provide one example of this challenge. In this case, the Vulnerable Persons Secretariat was called upon to provide evidence to support their argument that the bill would negatively impact the lives of people with disabilities. Although much evidence was collected in the form of individual narrative accounts, anecdotes, and research from other jurisdictions around the world, it was not possible to meet the requirements for statistical proof. This topic is the focus for our co-design, with the aim that approaches designed for this scenario can be applied to other small minority data challenges.

To learn more about this case study, please see Catherine Frazee’s testimony to the Standing Committee on Justice and Human Rights, November 10, 2020.

The Challenge of Proof

In preparation for our Minority and Outlier Data Co-design, we’re encouraging everyone to think about the challenge of proof for a small group, even a group that is just one person: you.

Think of something you experience in your life that is difficult to demonstrate. Perhaps it’s an emotion you feel, a value you hold, or a pain you experience. How might you go about proving your experience to someone else? How might you document or demonstrate it? What kind of proof could you produce to convince someone about the validity of your experience?

You can use the comment form below to share your ideas of how to approach this challenge with the We Count community.

Earn a Learner badge

You will learn:

  • How evidence-based decisions fall short of meeting the needs of marginalized, highly diverse communities
  • The challenges of producing proof for a highly diverse group of small minorities and outliers who are marginalized
  • How the passage of policy changes to Medical Assistance in Dying (MAiD), Bill C7, is devaluing the lives of persons with disabilities by singling out this group as not requiring a foreseeable death in order to access MAiD

Learn and earn badges from this event:

  1. Watch the accessible Designing Proof and Evidence with Minorities and Outlier Data workshop
  2. Apply for your Learner badge (four short answer questions on the contents of the webinar)

Earn a Brainstormer badge

You will brainstorm:

  • Acceptable forms of evidence, proof and data that could be produced by a highly diverse group of small minorities and outliers who are marginalized
  • Alternative strategies and tools for minorities to collect and provide this evidence to policy makers

Brainstorm and earn badges from this event:

  1. To qualify for this Brainstormer badge, you must have the Designing Proof and Evidence with Minorities and Outlier Data Learner badge
  2. Watch the accessible Designing Proof and Evidence with Minorities and Outlier Data workshop again
  3. Apply for your Brainstormer badge

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